Tuesday, October 31, 2006

Angel has a little bit of a fever...


...so say a little prayer that she feels better! She's resting today and the doctor said that a low fever shouldn't stop her from getting her surgery on time. Here's a picture of Angel in her room at the Bardeloza's home!

Monday, October 30, 2006

Angel's first full day in Dallas





(Picture 1: Pol, Angel, & Tracy; Picture 2: Pol and Angel in the lobby of the Medical City Hospital)
Angel and Pol are still adjusting to the time change. I picked them up at 12:45 and we went to lunch at the famous Dickey's Barbecue (very popular with the Apert families who go to Medical City) right across the street from the hospital. Pol had his first real Texas BBQ meal of beef brisket! I think he liked it. Angel didn't want to sit in the high chair. She wanted to sit on Daddy's lap! After lunch we went to the hospital to meet Tracy Romano of Medical City who was instrumental in clearing all of Angel's surgery free of charge. We also met Marna and Sue at World Craniofacial Foundation. They gave a beautiful alphabet and animal quilt to Angel. Angel had some pictures taken and then we took a little tour of the hospital to show Pol where to get something to eat, where Angel's recovery room was going to be, and where the computers are so that he can write his family and friends from the hospital. It was good for them to see the hospital, but we were all very tired at the end of the day. Tomorrow is a day for rest for everyone and then Wednesday is a very long pre-op day with tests and xrays and pictures and measurements and appointments.

We also had WONDERFUL news. Dr. Stager, the Dallas opthalmologist who specializes in kids with craniofacial disorders has agreed to see Angel free of charge. Thank you Dr. Stager!!! More on that later. We will make appointments for Angel to see him and he will determine what surgeries need to be done on her eye muscles so that she has better control of her eyes! We are so happy about this!

More news on Wednesday.

Sunday, October 29, 2006

Angel is here!

(Pictured are: Cissy, Angel, Pol, Lola, & Lolo)
Angel and her daddy Pol are in the US! They arrived in Dallas today. We all went to the host family's house where Pol was treated to a nice Filipino meal of rice, pickled veggies, and fish. Angel was held by her "new" Lola (that's Filipino for grandma!). She met many people from the family including her host parents Eddie and Cissy Bardeloza and Lolo (that's grandpa!). Pol and Angel have a very nice room that was filled with toys and stuffed animals (and diapers!). Tomorrow, we are going to the hospital and the different charity agencies that have helped them get here to say "hello" and "thanks"!

Saturday, October 28, 2006

The caravan of donations is heading out...


We're on our way to Dallas from Austin with all the donated and purchased stuff for Angel! We're bringing 800 baby wipes, 350 diapers, 70 jars of baby food, 8 brand new outfits, 5 toys, 4 teddy bears, 3 bags of groceries, 2 baby books, 2 cans of formula, a box of rice cereal, apple juice, pedialyte, tylenol for kids, bandages, a carseat, a crib, a mobile, a swing! Can't wait to see you Angel!

Pol and Angel are on their way!


Here's Pol's last email to me from the Philippines:
"this will be my last email here the next one will be at LA. we are preparing here. we are very busy. 30 minutes from now we will go to the airport. thank you thank you thank you."

Friday, October 27, 2006

More thanks for Angel's angels in the Philippines

Pol and Eva would like to thank the following donors and friends in the Philippines who have helped them with their trip to Dallas for Angel:

Baby Joy Wong
Tisha Bautista
Jaime & Sofia Inocentes
Weng Cordero
Marion Coscoluella
Lea Chien
Albert & Gretchen del Rosario
Meg Isleta
Cindy Segura
Josette Alcordo

There are also numerous donors who wish to remain anonymous. Thanks to all!!

Wednesday, October 25, 2006

Angel's first surgery is scheduled

Angel will be going to many appointments with a variety of doctors on Wednesday, November 1 in preparation for her first surgery Thursday, November 2. She will be having the first of two surgeries to separate her fingers and toes. After her surgery, she will be in casts for three weeks to help give the new fingers and toes time to heal.
Here is more information and pre-surgery pictures about Apert-related syndactylies:
http://www.thecraniofacialcenter.com/apert_hands_feet.html
Here is an explanation of the operation and treatment for syndactyly and post-surgery pictures:
http://www.thecraniofacialcenter.com/apert_treat_hands_feet.html

Tuesday, October 24, 2006

More thank yous for AMERICAN AIRLINES & MARRIOTT

Marie Ising of AMERICAN AIRLINES MILES FOR KIDS program has authorized free airfare for Pol and Angel to fly from Los Angeles to Dallas and back! This releases funds to use for other needs. Despite our short notice, Ms. Ising has assured us that she can expedite this ticket. Pol and Angel will be arriving Saturday night 10/28 in Los Angeles. There are no flights to Dallas until the next morning, so Pol and Angel will be spending the night in LA. Fortunately for us, there are also Angel's angels at MARRIOTT. The RESIDENCE INN EL SEGUNDO LAX has give Pol and Angel a free room for their night's stay in Los Angeles. Thank you to Marna and Sue at World Craniofacial Foundation for soliciting their Marriott contact for some help.

Saturday, October 21, 2006

Charity designated for collection of funds for Eva's plane ticket

Angel's mom, Eva, will be staying behind in the Philippines until December. We are still vigorously soliciting funds to purchase a plane ticket so that she will be with her family at Christmas.

The following charity will be collecting funds for Eva's ticket. All funds will be tax deductible donations. Please have any funds sent to:

Apert International, Inc
PO Box 2571
Columbia, SC 29202
www.apert-international.org

The website will allow donations via PayPal and credit card, however, the website does not allow for a designation for a specific beneficiary. For donors sending checks, please write "Angel Toribio" in the memo line. For donors paying by PayPal or credit card on the website, please follow up the payment with an email to: info@apert-international.org The email should state the donor's name, the amount of the donation made via the website and a notation to Don Sears (the President of the charity) that the donation should be earmarked for Angel Toribio.

Thursday, October 19, 2006

UPDATE: Thank you to Philippine Air

We previously reported that a ticket had been purchased for Pol and Angel. We were able to return that ticket as Philippine Air donated two seats for Pol and Angel! This is a wonderful donation as it has saved money that can now be spent elsewhere for other needs. Pol and Angel will be arriving Oct 28th in Dallas.

Tuesday, October 17, 2006

A special thank you to Amy Galm at CAPPS Kids

Since April 2006, Amy Galm at CAPPS Kids (www.cappskids.org) has been working feverishly for Angeleah. She has been the brains and brawn behind the scenes in contacting doctors across the country for free care, coordinating various government and hospital paperwork, and most recently involving WCF (World Craniofacial Foundation) in soliciting them to fund a plane ticket for Angel and Pol. Amy wants to thank Nancy Robertson of Grace Children's Foundation for her guidance, Tracy Romano at Medical City Children's Hospital in Dallas, and Dr. Fearon for supporting Amy in her quest to get Angeleah to the US for her Apert surgeries. She also is overwhelmed and thrilled with the financial response from YOU, the public! Thanks to everyone who has done something - big or small - to help little Angel. Every single person who has assisted has made a huge difference in this child's life.

VISAS!!!

The Toribios received their VISAS today! So the trip is on, they will be here in just a couple of weeks!

Friday, October 13, 2006

More Angel pics!



Angel is now rolling over and is doing great. She likes to laugh and loves to be tickled!
Here is a family picture with her parents and new sister, and another picture with her uncle!

Angel's First Birthday Party, and more pics


Here are pictures from Angel's first birthday party, a joint party also celebrating her new baby sister Ashley's baptism. Then, a picture of the girls sleeping after the party!

World Craniofacial Foundation

Another sponsor of Angel's surgery is the World Craniofacial Foundation. I know we all have read about several conjoined twins who have come to the US for surgery in recent years. It seems like all children who needs craniofacial surgeries these days get the help they need automatically because these foundations and generous surgeons and hospitals donate care.

However, in actuality, it takes a LOT of work by a number of different charities and foundations, for these children to get to come to the US to have the surgeries they need. The World Craniofacial Foundation works very hard to help the children who come to them for help.

From their website, this is their mission:

The World Craniofacial Foundation is dedicated to helping children and familes who experience deformities of the head and/or face by providing support and access to life-changing procedures. Reconstruct a face; create a new life. Today, we have the knowledge and technology to make these children look and feel normal. It is now possible to acheive excellent outcomes in the treatment of even the most complex craniofacial deformities. For the task ahead, support and participation is needed from all of us in order to transform the lives of those who need help.

The WCF has a fund for Angel as well, if anyone would like to donate through them. http://www.worldcf.org/ They accept gifts by check or credit card - and by credit card you can give via phone or email. All gifts are tax deductible.

Medical City Children's Hospital in Dallas

We are very lucky to have the Children's Hospital at Medical City Hospital in Dallas donating the space for Angeleah's surgery. They have a fund set up for Angeleah to help with the costs of the medications and other items needed by Angel for her surgeries and recovery, and to help with travel expenses for Angel and her dad, Pol.
http://www.mcchildrenshospital.com/

Here's a link to the Craniofacial Program directly: http://www.mcchildrenshospital.com/CustomPage.asp?guidCustomContentID={3C7FCEDF-DB32-4AC5-BF39-43B77B404698}

You can talk to them about Angel's case specifically, or make a direct donation to Angel's fund, by calling them directly at the Children's Hospital's main number and asking for the charity coordinator. 972-566-8888

Tuesday, October 10, 2006

Learn About Apert's Syndrome

Apert's Syndrome also known as Apert's syndactyly is an uncommon genetic disorder characterized possibly by some of the following: cleft pallet, small nose, high forehead, widely spaced eyes, sunken midface, or other craniofacial abnormalities, as well as severe symmetrical syndactyly (cutaneous and bony fusion) of the hands and feet. The genetic mutation happens to Chromosome 10 and children are usually diagnosed at birth by physical observance of abnormalities. It isn't exactly known how frequent Apert's Syndrome is. Some sources put it as high as 1 in 65,000 births, others much lower at 1 in every 200,000 births. Apert's can be inherited from a parent with the same disorder or as a fresh mutation. Usually there is no family history of the genetic disorder. In a child without Apert's, the skull has several "plates" that loosely connect. As the child grows the bones fuse and form the adult skull. in contrast to this, Abert's causes a child's skull to prematurely fuse which restricts and puts pressure on the brain. Commonly, surgery is needed in infancy or toddlerhood to alleviate this pressure and detach the fused bones from one another. Typically other surgeries follow as well. Preadolescence (usually between ages 6-11) allows for a time of correction of the sunken midface through a procedure known as the LeFort III. This surgery may be repeated throughout one's life as needed. The third type of procedure Apert's patients undergo commonly is for correcting the fusion of the hands and/or feet.

Treatment ideally should begin at birth usually at first in the form of support through proper diagnosis by a specialist. Over their lifetime, those afflicted with Apert's will see a wide variety of specialists such as speech therapists, ophthalmologists, and craniofacial surgeons to name a few. Above all the priority should rest on preventing the build up of pressure on the child's brain, while most parents’ secondary concern is a more normal appearance.

Written by Jenny Sigler, posted with her permission

Cafe press has baby angel's shop


The new cafe press storefront for Baby Angel is up! http://www.cafepress.com/helpbabyangel
The proceeds from any purchase ($1 for each item) within the storefront will go directly to the Baby Angel fund.
Check it out!

Saturday, October 07, 2006

Dr. Jeffrey Fearon


Dr. Jeffrey Fearon, a plastic surgeon and expert in Apert Syndrome, has agreed to perfom Angel's surgeries for free.
You can find his biography and more information about the The Craniofacial Center in Dallas from their website.

Host family found!

A family in Dallas has generously volunteered to host Angeleah's family while they are here for her surgery. It is wonderful because the hospital where her surgery will be performed - Medical City Hospital - is very far from the Ronald McDonald house.

We are still collecting Walmart gift cards for Pol and Eva to use for personal care items and diapers for Angel, but we have received a good amount of food and no longer need to collect more.

Thanks to everyone for your generosity and support!


Goal for helpbabyangel -
Paying Angel's diapers, bandages, formula, etc, and
to bring Angeleah's mom, Eva,
to U.S. for the surgeries (This doesn't include money donated earlier that was
used for Angel's and Pol's Visas and for their travel
to Manilla to get the VISAS. )